2025 Partnering Organizations

Founded in 2002, ACRO represents the world’s leading clinical research and technology organizations, which provide specialized services that are integral to the development of drugs, biologics and medical devices. ACRO and its members advocate on a global basis for safe, ethical, high-quality medical research so patients can benefit from the development of new treatments and therapies.

For more information visit: https://www.acrohealth.org/

CISCRP offers a portfolio of services to support patient engagement, clinical research education, and clinical trial participation for study volunteers, clinical research stakeholders, and sponsor organizations. As an independent, neutral, nonprofit organization dedicated to patient outreach and education, CISCRP is uniquely positioned to assist with a variety of activities including developing plain language study specific documents and clinical trial summaries, organizing and running patient & care partner advisory boards, conducting research to better understand public perceptions about research, and hosting community engagement events.

For more information, visit CISCRP or contact Lindsey Elliott at lelliott@ciscrp.org

ClinEco is a web-based platform and community that connects all the stakeholders of decentralized, hybrid and conventional clinical trials. The ClinEco platform and B2B marketplace enables accelerated identification of high-value providers and partners. Uncover innovative and emerging companies to expand your clinical trial capabilities.

We are onboarding leaders in clinical research to:
Explore the Ecosystem. Engage Partners. Exchange Capabilities.
Join the B2B community today at clineco.io or email sramirez@clineco.io to schedule an onboarding session.

The Dravet Syndrome Foundation Spain is a non-profit patient organization dedicated to improving the lives of those affected by Dravet syndrome, a rare and severe form of epilepsy. Through our advocacy, research, and community support efforts, we strive to advance scientific understanding and treatment options for this challenging condition. Our Foundation collaborates with healthcare professionals, researchers, and industry partners to drive innovation and improve patient outcomes. Together, we can make a difference. Join us in our mission to support families and accelerate research at dravetfoundation.eu.
For more information: www.dravetfoundation.eu or Contact informacion@dravetfoundation.eu

The FOXG1 Research Foundation (FRF) is the parent-led, global rare disease patient organization driving the research to find successful and precise treatments, and ultimately a cure, for every individual in the world with FOXG1 syndrome, while deeply focusing on patient advocacy, patient data, education, and family support. FRF is pioneering a lean model to dramatically cut down the time and costs of developing genetic therapies for rare diseases.
For more information, visit: www.foxg1research.org or send email to contact@foxg1research.org.

Sustainable Healthcare Coalition: Informing and inspiring global health systems to make the transition to sustainability.

The Sustainable Healthcare Coalition is a partnership of healthcare organisations that looks for the greatest opportunities to accelerate sustainable healthcare across the public and private sectors. Action orientated; the partnership focuses on solving practical problems learning through open-minded collaboration by evaluating impact to understand what is good for business, healthcare organisations, the environment, health, and our common future.

Focusing on key obstacles and opportunities, the partnership shares data and insights and develops best-practice guidance and tools for use in healthcare systems and their supply chain partners, including the world’s-first GHG life cycle assessment guidance on how to measure the carbon footprint of pharmaceuticals and medical devices; a care pathways assessment methodology , and currently under development a standardised framework and accompanying eco-design tool to assess the impact of clinical trials.

For further information visit: https://shcoalition.org or contact info@shcoalition.org

Cure SMA leads the way to a world without spinal muscular atrophy (SMA), the number one genetic cause of death for infants. We fund and direct comprehensive research that drives breakthroughs in treatment and care, and we provide individuals with SMA and their families the support they need for today.

Alyssa Zavislak
Senior Development Manager
630-885-8473
alyssa.zavislak@curesma.org

DiMe is a global non-profit and the professional home for all members of the digital medicine community. Together, we tackle the toughest digital medicine challenges, develop clinical-quality resources on a tech timeline, and deliver these actionable resources to the field via open-source channels and educational programs. Join us to advance the ethical, effective, equitable, and safe use of digital medicine to redefine healthcare and improve lives.

The Decentralized Trials & Research Alliance enables collaboration of stakeholders to accelerate the adoption of patient-focused, decentralized clinical trials and research within life sciences and healthcare through education and research. Our vision is to make research participation accessible to everyone, enabled by the consistent, widespread adoption of appropriate decentralized research methods.

To learn more about the DTRA & membership opportunities, please visit www.dtra.org.

ISPEP, the International Society for Patient Engagement Professionals, has a vision to connect and protect the essential work of all Patient Engagement Professionals (PEPs), who collectively amplify and evidence the patient voice in clinical research and drug development. An international assembly of experts, ISPEP is a not-for-profit organization, who enable its members to take the leads as ‘Change Champions’ in addressing challenges of patient engagement practices, anchoring patient engagement as a critical patient science through the accumulation of Patient Engagement Data, transacted by accredited PEPs. Since our initiation in April 2024, we are a growing society of over 700 global members from over 260 organizations in pharma/life sciences, patient advocacy groups and vetted solution providers. To become part of the movement and learn more, including membership, sponsorship and partnership opportunities, contact Emma Sutcliffe CPO/founder emmasutcliffe@ispephub.org and Alex Charge CEO alexcharge@ispephub.org or to propose topics for inclusion in the ISPEP calendar and global newsletter, Olivia Kersey Managing Editor oliviakersey@ispephub.org

The MedSurplus Alliance’s (MSA) Kits4Life Initiative is an award-winning program developed by the clinical research community to re-purpose clinical trial supplies, lab kits, and equipment to help close the healthcare gap worldwide. These supplies donated via Kits4Life reach recipient aid organizations through MSA accredited Medical Surplus Recovery Organizations (MSROs), which ensure the supplies are used to advance equitable access to health when and where they are needed, and also provide support for health care, diagnostic labs, medical training program in low resource settings. Kits4Life members include Bayer, Eli Lilly, Labcorp Drug Development, Janssen, Roche, Sanofi US, Sanofi Espoir Foundation, GSK, IQVIA, Astra Zeneca, Novo Nordisk and the Society for Clinical Research Sites. We are fourteen members to date and growing.

Since 2020, Kits4Life has received 880 shipments from approximately 475 sites and distribution centers, with impact in 15 countries to date.

Kits4Life operates in the U.S., Australia and Is seeking to expand in Europe.

If your organization wants more information on Kits4Life membership, please contact:
Donna Libretti Cooke, JD
The Task Force for Global Health
Dlibretticooke-consultant@taskforce.org

The MedSurplus Alliance’s (MSA) Kits4Life Initiative is an award-winning program developed by the clinical research community to re-purpose clinical trial supplies, lab kits, and equipment to help close the healthcare gap worldwide. These supplies donated via Kits4Life reach recipient aid organizations through MSA accredited Medical Surplus Recovery Organizations (MSROs), which ensure the supplies are used to advance equitable access to health when and where they are needed, and also provide support for health care, diagnostic labs, medical training program in low resource settings. Kits4Life members include Bayer, Eli Lilly, Labcorp Drug Development, Janssen, Roche, Sanofi US, Sanofi Espoir Foundation, GSK, IQVIA, Astra Zeneca, Novo Nordisk and the Society for Clinical Research Sites. We are fourteen members to date and growing.

Since 2020, Kits4Life has received 880 shipments from approximately 475 sites and distribution centers, with impact in 15 countries to date.

Kits4Life operates in the U.S., Australia and Is seeking to expand in Europe.

If your organization wants more information on Kits4Life membership, please contact:
Donna Libretti Cooke, JD
The Task Force for Global Health
Dlibretticooke-consultant@taskforce.org

The Leukemia and Lymphoma Society® (LLS) is a global leader in the fight against cancer. We are the largest nonprofit dedicated to creating a world without blood cancers. Since 1949, we’ve invested more than $1.6 billion in groundbreaking research, pioneering many of today’s most innovative approaches. In addition to funding lifesaving blood cancer research around the world, LLS provides free information and support services, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care. Visit LLS.org to learn more about our mission, view grant opportunities and access free education resources. To find out more about our free services and how we can help you and your patients, contact an Information Specialist at 1-800-955-4572.

The Pistoia Alliance is a global, not-for-profit alliance that advocates for greater collaboration in life sciences R&D. Our mission is to lower the barriers to innovation through pre-competitive collaboration. We bring together stakeholders from industry, academia, and government and have more than 200 member companies working together on our projects and in our specialist communities using our proven framework for open innovation to transform R&D, advance science and generate better outcomes for all.

To find out more about becoming a member of the Pistoia Alliance visit
www.PistoiaAlliance.org

The Society for Clinical Research Sites (SCRS) is the leading advocacy organization dedicated to unifying the voice of the global clinical research site community. Representing more than 11,000 research sites in 54 countries, SCRS facilitates industry collaborations and conversations dedicated to site-focused advocacy, education, mentorship, and connection. SCRS is an active and influential champion for sites in industry initiatives to ensure that the perspective of sites is heard and valued. Our voice. Our community. Your success. Learn more and get involved at myscrs.org.

SGM Alliance is a 501c3 nonprofit that advocates for the inclusive and meaningful participation of Sexual and Gender Minorities (SGM) in changing and improving healthcare. Our mission is to educate and advocate for inclusive SGM participation in clinical trials, life sciences and the evolution of healthcare. We amplify SGM voices, ensuring their unique healthcare needs are understood. Through education, we inspire medical professionals and change-makers to embrace diversity and advance inclusivity. Together, we break down barriers and drive progress for a healthier, equitable future for all.

For more information, visit: www.SGMAlliance.org or send email to info@SGMAlliance.org.

TransCelerate BioPharma is a collaborative consortium of the global R&D community who offers publicly available operational solutions that help unify knowledge to accelerate how research becomes life-saving healthcare. Our innovations make the treatments of the future happen faster. TransCelerate aims to break down barriers and foster true collaboration among the global scientific community, the labs and clinical trials sites where they conduct groundbreaking discoveries, and the health authorities that verify these breakthroughs.

For more information, contact Heidi White at heidi.white@transceleratebiopharmainc.com.